Monday, November 24, 2014

Sometimes people amaze you with their brilliance…..and right now I'm amazed with my girls. They have just organised and taken part in a 24 hour sponsored bike ride for the MS Trust. And it's all in preparation for their bike ride from London to Paris in 2016. London to Paris? That a bloody long way! But what an achievement that will be!

So right now I'm feeling pleased with my lot. I went over and saw them on the static bikes, and cheered them on. I chatted to people I'd known for a while and also to new people.

It's amazing what can be done when people pull together, and how it can make people feel. I'm sure the girls feel good, and so pleased. As do I :)

Thanks to……

*The Daventry Rugby club, for allowing the girls to hold the event there.

*The Training Shed for the loan of two exercise bikes.

*Everyone who gave their time and support, riding, sponsoring, supporting, providing refreshments.

*Special love and thanks to my girls, their partners and the good man.

Monday, November 17, 2014

Why does walking equal worthwhile?

I would guess that the title would give you an indicator of how this is going to go, and that maybe, JUST MAYBE I am a little bit pissed off.

I am from a small town, and whilst the vast majority of people I meet are helpful, there are exceptions to this rule, as there always is, and these exceptions make me want to stab myself in the face. Or maybe not. But you get the idea….

Just because I am using a wheelchair or a scooter, it doesn't mean that my mind and voice don't work. And even if they didn't, it doesn't mean I wouldn't appreciate being talked to. Not about, in or out of earshot. Or at. But to.

I can't imagine that this has a difference internationally, so this is my plea to all you readers. If you should meet anyone that appears different, or without some ability, and you have something to say, or ask, PLEASE talk TO that person. I promise you, that it will be appreciated.

I tell you what's not appreciated. Sometimes, I catch people do a double take of me and the Good Man. And I even had one of these double take fuckwits say to me, "He's good, isn't he? Being with you." To which I replied. "No. He's LUCKY to be with ME." I could've said SO much more, but we were in a public place….

Today was an exception, with people treating me well and like a normal. And that's sad. Because it should not be an exception. It should be normal. Because, I am NORMAL….. ish. I have thoughts. I have feelings. I have a voice. What I don't have are working legs. That's all. And even if it wasn't, it doesn't mean that it's ok to treat me, or ANYONE ELSE as less.

And to think, I'm the one that's described as being without ability.

Saturday, November 15, 2014

A girl can dream...

After a busy busy time of late, I'm pleased to report, that thanks to the help of our amazing friends, we have moved! Everything is in, and in it's place. So whilst the necessary building work is under way at our house, so we can sell it, I am viewing this as a six month holiday from reality. I have a garden I can get in to, and a loo, both downstairs AND upstairs…..What more do I need? And it is GLORIOUS here!! Tiny, but glorious. And now I have internet, and a phone, I can dip in and out of the world.

So, the building work has started, and already loads has been achieved. Now, if the building work could be completed, the house sold, and a new place bought and moved into, in time with our six month tenancy here ending……well, that would be AMAZEBALLS! I'm not asking for much really…..
And it would appear that I've left my writing mojo behind. It's probably packed away in a box of various bits and bobs….

I don't know if it's because I've kicked backed and relaxed a bit, but I am just chillin' here…..
I mean I look at houses on the internet…..the good man has been to the house that's undergoing a facial and backside uplift…..and it's looking great! But until it's sold there's not much more to do….except enjoy my time here….

Which is a little tricky when I've heard someone refer, correctly, in my opinion, to MS and all the varied and great joy it brings, as a prison sentence. A sentence that is life long, and is issued randomly with no crime being committed. At least sometimes MS behaves enough for me to get day release.

And that brings me neatly to my wonderings/wishings…….What would I do if I didn't have MS for a day? Well, call me crazy, but probably nothing grand….

1, Go for a walk, holding hands with the good man and the little man….on a beach! Or anywhere actually…...
2, Have a shower. Standing up.
3, Drive.
4, Go to the gym. Swim. Do yoga.

I AM ONE CRAYZEE MO FO. Now if I had a week I could probably be found on some beach in Cornwall….I LOVE it there…..I could just sit and look and think and look and look some more… so…..

A girl can dream…...