Tuesday, February 27, 2018

Dear MS, you are an arsehole.

I have been absent for a wee while. And I’d love to say it was because I’d been too busy living my life right into its corners, but no, I am currently staying at a hospice. Too find myself here is a bit of a shock. I mean the clues were there about what an arsehole my type of  MS is. I was stripped of my job, that I was so proud of. Then the next thing to go was my ability to drive, then walking......
 AND OH WHY DON’T YOU JUST FUCK OFF!! THERE’S NOTHING LEFT. I DON’T KNOW WHAT MAKES ME, ME ANYMORE. Well, I suppose nothing can errode the FACT that I am a mum, a sister, a daughter and last but not least, a nanny, to two gorgeous little bunnies. So all of that is great. But just kind of happened. But what would I choose to do??  Ceramics? Or my number one love.....silversmithing. Or something that I’ve been going on about for years, sign language. I need to get on with doing one or the other......and I pick sign language to start me off. And like the teenager that I am......I know a few swear words, so I need to move on to conversational signing.

So I got home from the hospice a few days ago, and there really is no place like home.
whist it’s great to be home, it’s not so great to have someone tell you to get rid of your beautiful bed, because from now on, you’ll have a hospital bed. This is so the care staff, that haven’t been sorted yet, will be able to access the bed, from both sides. FFS, would you let anyone choose furniture for you? Oh yeah, and it’s a single. Not happy. I also have to store various bits of large equipment in the bedroom and shower room. And just to be clear, I know that I’m moaning, but I would not want to be without any of the equipment. It all gives me a certain degree of independence. I am now regretting the loss of the garage......not really, it was hideous, and we now have a lush patio in it’s place. We should have built a shed about four times larger than we did, to house all the equipment.

Allt the equipment has spilled over and in to our bedroom, quite the conversation starter.

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