Wednesday, July 26, 2017

Milk bottle accessory du jour, friends and date night.

Taa Daa! Brilliant. I'm having a relapse, therefore, I request drugs. Several phone calls to MS nurses, and so far, zilch. They don't call you to see if you're ok, so it's up to you to let them know of any problems. You could, either,

A, retreat to a corner, and quietly and privately, wait for the problem to pass.

Or B, call for help. Over and over, until you get it. Be the squeaky wheel until you get the oil/drugs.

According to the ms society, relapses can last for days weeks or months. Mmmm vague or what? I put it to you MS that I have several plans, in the near future, and I would rather be left alone to enjoy them. OK? You've had my driving AND my walking. You are NOT having my time with friends, or The Good Man. Or The Little Man. IT'S THE SUMMER HOLIDAYS! Do one.

Some people have a mild form of ms, but my form is aggressive. And unusually for secondary progressive, according to the neurologist, and my MRI results, I still have the delight of relapses. Whatever! Yes! You can use me for medical students to study. Just give me the drugs! Please!
Now yeah?

Yeah, so that's where I am at the moment. With a right eye working independently of the left. Beautiful!!

Talking of beautiful, my Supra Pubic is healing nicely. And it has made a huge difference to me, both mentally and physically. For one thing, and it is a small thing, I'm not scouting for toilets whenever I go out. I just go out. Like the olden days. Well, not quite. My new accessory du jour, is a used milk bottle. It's light and has a lid, so if I can't get to a loo, I have a back up plan. Brilliant! And my bladder is allowed to be a bladder i.e. Fill up, empty, fill up, empty again and again, Despite being told it was ok, to have bags and tubes attached to allow free drainage I just always felt it was unhealthy. I had a vision in my head of my bladder being like an unused balloon, shoved into a drawer and forgotten, until it stuck together, and was no longer useful as a balloon. And it is discrete.....(well that looks all wrong. Oi! Paterson, spell check?)

So that's where I am, at the moment (she says, forever hopeful this MS bollocks will pass....)
amazing accessories, a hole punched pubic area, plans with friends and a date night booked with
The Good's been eight years since our first date❤️

Speak soon Xx

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